The Foundation's objective is to fund research to find a cause, expedite treatments and eventually a cure, as well as providing information, education, and support to people who have CFIDS (chronic fatigue and immune dysfunction syndrome also known as chronic fatigue syndrome (CFS), myalgic encephalomyelitis (ME) and many other names).
The National Forum newsletter for Summer 2021 is now available. We no longer are publishing it as a print edition but are putting it on-line as a PDF file at no cost.
Click the images below to download.
We no longer need membership although we will welcome any and all donations.
June 10th 2021 The following names have been added to our Memorial List Robert Barshied — Robert “Bob” Benson
Amy Haskins Croyder — Steven Eddy
Ian John Fulton — Patrick Selby Johnson
Theodore Samuel “Teddy” Katz — Faustine Nogherotto
Elizabeth Derryan Paul, PhD — Elizabeth C. “Libby” Potter
Lisa Brinkley Powell — Carol Sieverling
Lindsay Sturm
June 3rd 2021 National CFIDS Foundation: Conclusive evidence connects chronic alpha-radiation exposure to liver cancer June 3rd, 2021 by NCF Medical Committee (Copyright 2021)
In its on-going research and investigational work, the National CFIDS Foundation has identified a critical connection between chronic alpha-radiation exposure and the development of hepatic/liver cancer.
In 2010, the National CFIDS Foundation identified the presence of internal alpha-radionuclides in its CFIDS/ME patient cohort. SKY analysis subsequently identified chromosomal abnormalities in these same patients. Liquid biopsies then identified the presence of specific cancer proteins in 60% of these patients. Internal alpha-radiation exposure represents a chronic exposure profile for patients.
From the Center for Environmental Health Studies, in Boston, "According to the National Research Council's BEIR V Committee, there is "conclusive" evidence that chronic exposure to alpha-emitters can cause liver cancer in humans."
Recently, the National CFIDS Foundation provided a $100,000 research grant to Dr. Jack Wands, a world expert in hepatic/liver cancer at Brown University, for his work on ASPH, a liver enzyme that is generated in hepatic/liver cancer. ASPH positivity has been seen in patients with CFIDS/ME.
According to the Foundation, there is no doubt in our minds at this point that the liver is a key target associated with our research discoveries, both past and present. The late Dr. Yoshitsugi Hokama, pathologist at the University of Hawaii, believed that the liver was of critical importance to the disease process associated with CFIDS/ME. As such, the Foundation is highly optimistic regarding Dr. Wands' research and the clinical implications of his work that will follow.
Liver cancer and exposure to ionizing radiation" which is enclosed for your use
March 25th 2021 Commonalities between COVID-19 and Radiation Injury by the Radiation and Nuclear Countermeasures Program (NIH) - Parallel etiologies are drawn between SARS-CoV2 infection and radiation injuries.
August 3rd 2020 The following names have been added to our Memorial List Rosie (Rose Mary) Bayman — Rose-Marie McGinn
Cindy Siegal Sheplar — Marcie Lynn Zinn, Ph.D.
January 1st 2020 The following names have been added to our Memorial List Heather Colman-McGill — Freda Grossman
Simon Helmfrid — Roel Klieverol
Craig W. Maupin — Giovanni "John" Paternostro
July 2nd 2019 The following names have been added to our Memorial List Jacquie Beckwith — Terry Boyer
Rosie Buchanan — Jennifer Chittick
Denise De Hoop — Susan Kay Drake
Dewey Ewing — Amy Kesteven
John Knight — Shawn Kregan
Malcolm Morrison — Pauline Overden
Jan van Roijen — Edwina Schwegmann
Ted Shaw — Olwen Tinnion
Barbara Turnbull
December 6th 2018 The following names have been added to our Memorial List Michele Daley — Rebecca (Becky) S. Fleig
Dr. Anne MacIntyre — Anne Ortegren
Sarica Narula Patel — Michele M. Van Horn
Klara Jancikova Wilson
November 16th 2018
These papers, notably from Mothersill and Seymour, form the fundamental scientific basis for the newest discoveries (radiation induced bystander effects and biophoton emission) being made by the National CFIDS Foundation on behalf of the worldwide patient community. Our cohort is fully represented by internal alpha-radiation exposure which leads to chronic radiation sickness with an increased risk for neurodegenerative tauopathy and cancer resulting from genomic instability and chromosomal abnormalities.
Reference #1: Vegetative-Vascular Dystonia and Osteoalgetic Syndrome or Chronic Fatigue Syndrome as Characteristic After-effect of Radioecological Disaster: The Chernobyl Accident Experience; Loganovsky KN
“Chronic Fatigue Syndrome (CFS) is one of the most important health problems among Chernobyl accident survivors, a malady which could be triggered by low and very low doses of ionizing radiation….”
Click here to see the full article in a PDF format
Reference #2: Do Low Doses of Ionizing Radiation Affect the Human Brain; Loganovsky K; Data Science Journal, 23 June 2009
“A hypothesis about the development of Chronic Fatigue Syndrome (CFS) under the impact of low and very low doses (of radiation) combined with psychological stress has been suggested. CFS can be considered to be an environmentally induced predisposition and vestige of forthcoming neurodegeneration, cognitive impairment, and neuropsychiatric disorders. Moreover, CFS and metabolic syndrome X are considered to be both radiation-associated syndromes and stages of other neuropsychiatric and physical pathology developments, and CFS can be transformed into metabolic syndrome X. Radiation-induced damage of mitochondrial DNA in post-mitotic tissues with low proliferation activity may be a basis for the effects of low doses in an increase of non-cancer morbidity and mortality in the Chernobyl accident survivors.”
Click here to see the full article in a PDF format
Reference #3: Speculations about Bystander and Biophotons; Sanders CL; Dose Response 2014 May 19;12(4):515-7
Letter to the editor:
“Mothersill and many others during the last hundred years have shown that cells and now whole animals may communicate with each other by electromagnetic waves called biophotons. This would explain the source of the bystander phenomena. These ultra-weak photons are coherent, appear to originate and concentrate in DNA of the cell nucleus and rapidly carry large amounts of data to each cell and to the trillions of other cells in the human body. The implications of such a possibility can be wonderfully important….Mothersill has demonstrated possible photon signalingamong animals as Gurwitsch and Kaznacheyev have both done in vitro. The ramifications of these observations are enormous.”
Click here to see the full article in a PDF format
Reference #4: Ultra-Violet Light Emission from HPV-G Cells Irradiated with Low Let Radiation From (90)Y; Consequences for Radiation Induced Bystander Effects; Ahmad SB, McNeill FE, Byun SH, Prestwich WV, Mothersill C, Seymour C, Armstrong A, Fernandez C; Dose Response. 2013 Feb 1;11:498-516.
Click here to see the full article in a PDF format
Reference #5: Transmission of signals from rats receiving high doses of microbeam radiation to cage mates: an intermammal bystander effect; Mothersill C, Fernandez-Palomo C, Fazzari J, Smith R, Schültke E, BräuerKrisch E, Laissue J, Schroll C, Seymour C; Dose Response. 2013 Aug 27;12(1):72-92
Click here to see the full article in a PDF format
November 15th 2018 Video slideshow #1: From Biophotons to Bystander Effects: The implications of non-targeted effects for Radiation Biology and Radiation Protection by Dr. Carmel Mothersill; Oct 19, 2018:
