The Foundation's objective is to fund research to find a cause, expedite treatments and eventually a cure, as well as providing information, education, and support to people who have CFIDS (chronic fatigue and immune dysfunction syndrome also known as chronic fatigue syndrome (CFS), myalgic encephalomyelitis (ME) and many other names).
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April 7th 2017 CNS findings in chronic fatigue syndrome and a neuropathological case report — pdf file
In this case report, Dr. Dianne Langford et. al. address central nervous system (CNS) involvement of CFS and present neuropathological autopsy findings from a patient who died with a prior diagnosis of CFS. Among the most remarkable pathological features of the case are focal areas of white matter loss, neurite beading, and neuritic pathology of axons in the white matter with axonal spheroids. Atypical neurons displaying aberrant sprouting processes in response to injury are observed throughout cortical gray and white matter. Abundant amyloid deposits identical to AD plaques with accompanying intracellular granular structures are observed as well. Neurofibrillary tangles are also present in the white matter of the frontal cortex, thalamus and basal ganglia. Taken together, these neuropathological findings warrant further studies into CNS disease associated with CFS. This research was funded by the National CFIDS Foundation and was published in the Journal of Investigative Medicine.
January 14th 2017 The following names have been added to our Memorial List Sharon Bandel — Mel Jayne Bayley
Ellen Berntsen — John Louis Berntsen
Pam Carmichel — Gail Chamberlain
Cheryl Lynn Gates — Terry Lynn Grise
Lisa Ann Matson — Justin Arthur Noble
Senator Miriam Defensor Santiago
December 7th 2016 Total-body irradiation with high-LET particles: acute and chronic effects on the immune system by Gridley — PDF file
High-LET radiation exposure results in chronic immune dysfunction. Relative radiosensitivities of the various lymphocyte populations (B-cells > T-cells > NK-cells) and T-cell subsets (CD8 > CD4) reported here are consistent with the NCF's CFIDS patient clinical profiles. The CD19+ B-lymphocytes were most radiosensitive and decreased with increasing radiation dose.
This is consistent with Dr. Fatih Uckun's previous CFIDS research observation (Clinical activity of folinic acid in patients with chronic fatigue syndrome) that 94% of CFS patients had a severe B-cell immunodeficiency with a marked depletion of their CD19+IgM+ mature B-lymphocyte population.
October 5th 2016 The following names have been added to our Memorial List Christine “Tink” Bastian — Jodi Lyn Bassett
Linda Gayle Hayes Burke — Ingeborg Geuijen
Thomas Jarrett — Louise Ramage
Janice Fulwell Storey — Victoria Kristal Taylor
July 16th 2016 The following name has been added to our Memorial List Janice Schneier